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Sarah Buckley

17 Fetal Alcohol Syndrome Organizations and Resources To Know About

Every year over 40,000 infants are diagnosed with a completely preventable syndrome. Fetal alcohol spectrum disorders (FASDs) are a group of conditions that can occur in a person whose mother drank alcohol during pregnancy. FASDs are completely preventable if a woman does not drink alcohol during pregnancy. Unfortunately many women are either unaware or choose to ignore the dangers of drinking alcohol during pregnancy. There are numerous resources available for individuals looking for more information on FAS. Here is a list of organizations and resources to get you started.

Fetal Alcohol Syndrome General Information

Here is a list of five general health sites that provide information on Fetal Alcohol Syndrome:
  1. Mayo Clinic
  2. Center for Disease Control
  3. Kids Health
  4. National Institute of Health
  5. Wikipedia

Fetal Alcohol Syndrome Organizations

Here are five non profit organizations providing support for families dealing with FAS.

1. National Organization on Fetal Alcohol Syndrome

NOFAS educates the public, practitioners, and policymakers about the risk of alcohol use during pregnancy and FASD ,the leading known preventable cause of brain damage, developmental disabilities, and birth defects, and a leading known cause of learning disabilities and behavioral problems in children, adolescents, and adults.

2. Fetal Alcohol Spectrum Disorders- Center for Excellence

The FASD Center is a Federal initiative devoted to preventing and treating FASD. This Web site provides information and resources about FASD.

3. Families Moving Forward Program

The Families Moving Forward (FMF) Program  helps children with fetal alcohol spectrum disorders (FASD), their families, and the professionals who care for them.


Families Affected by Fetal Alcohol Spectrum Disorder (F.A.F.A.S.D) seeks to spread information, awareness, and hope for caregivers of people with FASD.

5. Great Lakes FASD Regional Training Center

The Great Lakes FASD Regional Training Center (GLFRTC) is funded by the US Department of Health and Human Services (HHS), Centers for Disease Control and Prevention and is housed at the University of Wisconsin-Madison, School of Medicine and Public Health, Department of Family Medicine. The GLFRTC provides training for medical and allied health professionals, students, and others on the prevention, identification and treatment of fetal alcohol spectrum disorders (FASD).

6. FASD Trust

The FASD Trust was founded in 2007 by Simon and Julia Brown to provide support for those affected by FASD and training / information for the professionals seeking to support them. The Trust now runs support groups for those affected by FASD across the UK, hosts various professional forums and has a variety of training and other resources for those affected by or interested in FASD.

Books on Fetal Alcohol Syndrome

Fetal Alcohol Spectrum Disorder (Understanding Mental Health) The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects When Rain Hurts: An Adoptive Mother's Journey with Fetal Alcohol Syndrome
Fantastic Antone Grows Up: Adolescents and Adults with Fetal Alcohol Syndrome Forfeiting All Sanity: A Mother's Story of Raising a Child with Fetal Alcohol Syndrome Understanding Fetal Alcohol Spectrum Disorder: A Guide to Fasd for Parents, Carers and Professionals (Jkp Essentials)

WRITTEN ON November 19, 2014 BY:

Sarah Buckley