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Pure Friendship for Individuals with Special Needs
Karen Wang
Humor, Parenting

A Special Needs Wake Up Call

The most surreal time of day for me is always the moment that I wake up - today I was awakened at 4:40am by a 6 year old who suddenly appeared at my bedside and informed me that he was finished sleeping. My children both sleep poorly - one for reasons related to his developmental disability, the other for completely different medical and emotional reasons.

So I’m never really sure where I am when I first wake up: my bed, one of the kids’ beds or on the floor next to a bed.  I never know what time I’ll be starting the day.  But I have to act quickly.  There might a be a crash to investigate somewhere.   Often there is loud crying in another room.  I might hear the front door opening.   Of course, I also have to get breakfast ready before the meltdowns start!

I have to ask myself:

  • Shouldn’t I be happy that my children are so talkative after years of speech therapy?
  • Grateful that they’re so active and intellectually curious?
  • Welcoming of their love and affection, even if it’s three in the morning?

My First Words in the Morning

For two weeks, I kept track of the first words out of my mouth in the morning (in pink font), or if I was too sleepy to talk, the first words spoken to me (in green font).   I think the result is an accurate representation of what really happens at home in the morning.  Interestingly, my husband slept through the whole thing.

Friday: “Ow! Stop jumping on me!”

Saturday: “Go back to sleep.  It’s still nighttime.”

Sunday: “Oh, good.  We slept in until 7.”  “No, Mom, I wasn’t sleeping. I was waiting for you.”

Monday: “Time for a snuggle.”

Tuesday: “Mommy, what’s 4 + 2 + 2 + 2?”  “10.”

Wednesday: “It’s still dark.  But it’s time for breakfast.”

Thursday: “You can’t just drop your whole body on the bed like that.  You weigh 100 pounds and you could hurt me.  Your knees landed right next to my head!”

Friday: “Happy birthday, sweetie.  You’re 12 years old today.”

Saturday: “Shhhh.  Let your Dad sleep in.”

Sunday: (Scuffle and whining.) “Be nice to your brother.”

Monday: “There’s no school today.  Don’t get up.”

Tuesday: “Why aren’t you getting up, Mom?”  “Because I’m tired and I want to sleep.”

Wednesday: “Come on, Mom.  It’s time to get up.”  “Help me.”

Thursday: (Toilet flushes and child immediately starts poking my face.)  “Go back and wash your hands.”

Friday: “Put your head on the pillow next to me so I can kiss you.”

Saturday: "Mom, where's the red paint pen? I woke up at 5:58. Can you get me some AA batteries? I took 3 more turns at my Monopoly game with Dad, and I'm going to surprise him when he wakes up because I bought another monopoly! Did you know that you can carry a pen in your shoe? Why don't you want me to turn on the light? Why is this golf ball pink?"

Sunday: “I love you.” “But I love you more, Mom.”

 What are your first words in the morning?

WRITTEN ON November 08, 2013 BY:

Karen Wang

Karen Wang is a Friendship Circle parent. You may have seen her sneaking into the volunteer lounge for ice cream or being pushed into the cheese pit by laughing children. She is a contributing author to the anthology "My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids With Disabilities"