Subscribe now and recieve 50% off all our ebooks as well as updates on all our online special needs resources.
Lauren Lewis
BY Lauren Lewis
46,387 views

25 Cerebral Palsy Resources You Should Know About

About 1 in 323 children has been identified with Cerebral Palsy according to estimates from CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network. There is an abundance of information regarding CP out there. However, it can be overwhelming sifting through all of that knowledge.

Here is a list of great resources regarding CP, including research articles, books, support organizations, blogs, and more.

Have another great resource to add? Let us know in the comments below! 

About Cerebral Palsy

1. Kids Health

Kids-HealthKidsHealth is the place to help explain CP to parents, teens and children. It provides simple explanations about CP that is easy for people of all ages to understand.

Mayo Clinic2. Mayo Clinic

Mayo Clinic gives a comprehensive overview of CP and provides parents with basic information about the support and resources you need, including symptoms, causes, risk factors, complications, and tests.

Cerebral Palsy Organizations

3. United Cerebral Palsy

ucp_logo_taglineEducates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. From home ownership to health care reform, inclusive education to competitive employment, UCP has established itself as a leader in the disability community.

4. Cerebral Palsy Family Network

CPfamilyNetwork The CP Family Network mission is to provide information to all cerebral palsy families about diagnosis, treatments and resources for their child and to provide information and legal resources to families that suspect a preventable birth injury may have caused their child’s CP.

CerebralPalsySupportNetwork5. Cerebral Palsy Support Network

The Cerebral Palsy Support Network (CPSN) is a not-for-profit organisation providing information and support services to people living with cerebral palsy and their families. We help empower individuals to lead more independent lives and provide support in a variety of ways to their families.

Cerebral Palsy Research

6. Cerebral Palsy International Research Foundation

PrintCPIRF is dedicated to funding research and educational activities directly relevant to discovering the cause, cure and evidence based care for those with cerebral palsy and related developmental disabilities.

CDC7. CDC Cerebral Palsy Research 

CDC has been studying cerebral palsy (CP) since the early 1980s. This information can help us look for causes and risk factors of cerebral palsy, evaluate the effectiveness of prevention efforts, raise awareness of the signs and symptoms, and help families and communities plan for services.

8. Cerebral Palsy Research Registry

Cerebral Palsy Research RegistryCerebral Palsy Research Registry (CPRR) is a multi-institutional collaborative effort whose primary mission is to improve our understanding of cerebral palsy. Representatives from Northwestern University Department of Physical Therapy and Human Movement Sciences, the Rehabilitation Institute of Chicago, and the University of Chicago have developed and continually improve the CPRR to promote research and new discovery in the field of cerebral palsy.

9. Columbia University Center for Cerebral Palsy Research

ctc-head-tc_textResearch projects in this center focus on improving the lives of children with physical disabilities. The staff includes highly skilled physical therapists and occupational therapists and a psychologist, and consultants, including a pediatric neurologist and social worker.

10. Cerebral Palsy Research Consortium of Michigan

cprcombannertop2cropThe goal of CPRCoM is to promote and accelerate cerebral palsy (CP) research aimed at measuring prevention strategies, treatment outcomes, and maximizing quality of life and community participation for persons with CP. United Cerebral Palsy of Michigan and the Ann Arbor Center for Independent Living are community partners of the CPRCoM.

Blogs

11. Love That Max

Love That MaxEllen Seidman started Love That Maxi in October 2008 as an inspirational, informational, occasionally irreverent blog. She regularly writes about her son, Max, who was born with Cerebral Palsy. In addition she writes about topics that are relevant to special needs families.

12. Aaronverse

AaronverseRecently profiled in the New York Times, Aaronverse is a Tumblr blog where Aaron Philip writes about his life dealing with his disability, and how it makes things different for him. He also post drawings, Frederator things, Pusheen stuff, Adventure Time and anything interesting.

13. The CP Diary

TheCPdiary“What is it like living with cerebral palsy? I cannot truly answer that question as for 46 years of my life I didn’t know it was, because at the end of March 2009 I was finally diagnosed. How did I feel as the child then, the adult now? Those times were enormously difficult for me. Some days I felt isolated, angry, cheated, misunderstood and frustrated. Other days I felt insular and alone. It wasn’t something my family talked about. “There was never anything wrong with me.” It was never brought up unless I talked about it then it was quickly dismissed like hot cakes as if the condition didn’t exist. But it did!”

Books about Cerebral Palsy

14. Out Of My Mind

Out of My MindMelody is not like most people. She cannot walk or talk, but she has a photographic memory; she can remember every detail of everything she has ever experienced. She is smarter than most of the adults who try to diagnose her and smarter than her classmates in her integrated classroom—the very same classmates who dismiss her as mentally challenged, because she cannot tell them otherwise. But Melody refuses to be defined by cerebral palsy. And she’s determined to let everyone know it…somehow. In this breakthrough story—reminiscent of The Diving Bell and the Butterfly—from multiple Coretta Scott King Award-winner Sharon Draper, readers will come to know a brilliant mind and a brave spirit who will change forever how they look at anyone with a disability.

15. Children with Cerebral Palsy: A Parent’s Guide

CPBook1The future is brighter then ever for children with cerebral palsy — the most common developmental disability among young people today. With advances in medicine, early intervention, and therapy, these children can maximize their potential and lead healthy, rewarding lives. But perhaps the most important influence of all comes from parents who provide constant support and encouragement. This is essential reading for all parents who want to learn about cerebral palsy and how it will affect their child and family.

16. Teaching Motor Skills to Children With Cerebral Palsy And Similar Movement Disorders: A Guide for Parents And Professionals

CPbook2All children with cerebral palsy and other conditions that result in gross motor delays need help and reinforcement to learn basic motor skills, usually with assistance from a physical therapist. Because the degree of developmental delay varies greatly from child to child, a thorough motor evaluation is an important step before establishing a specific therapy plan.

17. Cerebral Palsy: A Complete Guide for Caregiving

CP_3The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

18. Nathan’s Wish: A Story About Cerebral Palsy

Nathan's WishNathan struggles with cerebral palsy. The plot centers around a wounded owl that ends up in the care of the boy’s neighbor, Miss Sandy, a Raptor Rehabilitator. The bird, named Fire because of her bright yellow eyes, fails to regain the use of her broken wing, and both she and Nathan take the defeat extremely hard.

Mommy-Can-I-Play-150x23119. Mommy, Can I Play with Tommy?

“Mommy, Can I Play with Tommy?” is a story about a playground experience that provides children a new perspective on how to include a child with cerebral palsy.

Additional Resources [Updated]

Thanks to your comments we have added more Cerebral Palsy resources

20.Weinberg Family Cerebral Palsy Center

Weinberg

Weinberg Family Cerebral Palsy Center is devoted to helping patients with cerebral palsy (CP) transition from Columbia’s finest pediatric care to an expanding network of adult care specialists knowledgeable about cerebral palsy and related disorders.

21. CanChild Centre for Childhood Disability Research

canchild_logo

CanChild Centre for Childhood Disability Research is a research and educational centre located at McMaster University in Hamilton, Ontario, Canada.  Their research is focused on improving the lives of children and youth with disabilities and their families.

22. Cerebral Palsy Alliance Australiacp alliance5

Cerebral Palsy Alliance is an organization that provides family-centered therapies, life skills programs, equipment and support for people living with cerebral palsy and their families.

23. CP Daily Living

Here their goal is to help make the journey easier by helping parents navigate the challenges of CP by letting them know they are not alone.

ReachingfortheStars24. Reaching for the Stars

Cerebral Palsy nonprofit foundation led by parents, with a focus on the Prevention, Treatment and Cure of Cerebral Palsy

25. American Academy of Cerebral Palsy and Developmental Medicineheader_logo

The AACPDM provides multidisciplinary scientific education for health professionals and promote excellence in research and services for the benefit of people with cerebral palsy and childhood-onset disabilities.

Lauren Lewis

Written on November 6, 2013 by:

Lauren Lewis began working at the Friendship Circle in May 2012 as the Communications and Event Coordinator. After participating in Dance Marathon at the University of Michigan and meeting some amazing kids with special needs, Lauren fell in love with the cause and never stopped advocating. When not at the Friendship Circle, she is wearing maize and blue and enjoying life in Detroit. You can connect with Lauren on LinkedIn.
  • Cerebral Palsy

    Wow, I am so disappointed with this post. You have highlighted two of the biggest medical malpractice law firms and missed some of the most important CP organizations and resources. How about the Weinberg CP Center, CanChild, CP Alliance Australia, CP Daily Living, Northwestern’s CP Registry, Reaching for the Stars and AACPDM! UCP is one of the most misleading resources for parents and individuals with CP. They don’t focus on the CP community unless the local affiliate has chosen to, and their educational resources are modest.

    • I as a parent would not go to a law firm website anyhow. I am just trying to learn about the mild form of cerebral palsy my daughter has and resources but I have not come across many in my own searches other then blogs and law firms who are awful aiming at parents like us. Thanks for pointing that out.

  • Malky Tannenbaum Haimoff

    As a parent of a child with CP and a grateful beneficiary
    of Friendship Circle services, I must ask you to please revise this list! I have to agree with every point made by Michele of CP Daily Living in her comment above. In additional to adding CP Daily Living, Reach For The Stars, CP Alliance Australia, CanChild and AACPDM, please REMOVE the websites that may have a handful of informational articles but are anything but impartial. Exactly because of the abundance of information regarding CP out there mentioned at the start of this otherwise great article, we must be careful to only include resources that are transparent. Thank you!

  • Meadow Schroeder

    I agree with the other commenters, please revise this post! As a parent of a child with CP, the absolute last thing I want to be connected to when looking for information is a law firm whose only interest is making money off of what may or may not have been a case of malpractice. Especially when the firms represent themselves as sources of valuable information or other resources. Our community does not need that kind of deceptive self-promotion. And UCP is great for the wider disability community but isn’t focused on CP. Please look into the resources Michele listed and REVISE this list. Thanks!

  • Pingback: Our Road | Rileys Smile()

  • Dee Neske

    Thanks for at least adding the sites that Michele suggests even if you don’t point out the detractions of the two sites she asked you to take down. I agree with all that she points out.

  • Penny Leigh Strickland

    Whether or not I’m disappointed in this article, I am not prepared to ask that it be rewritten. A list of resources is always subjective. As the parent of three–yes, three–children with cerebral palsy, I have never heard of many of these resources…and I’ve been doing this for 25 years. However, I don’t agree with the comments about United Cerebral Palsy. All three of my children began receiving therapies there prior to turning one, and were enrolled in the preschool program prior to age three. While I realize they concentrate on many disabilities, I found them to be very knowledgeable and extremely helpful with my children. As a result of their early intervention efforts, I have three extremely well-adjusted and intelligent adults with cerebral palsy. In fact, one is an early childhood educator; one is a valuable employee and gifted photographer; and one is just an incredible individual that is impossible to forget.

  • fcmichigan

    Thank you for all of your feedback, We have revised the post and added the additional resources that Michele mentioned. While we try to be as thorough as possible we won’t always catch every resource, so thank you for helping out.

  • fcmichigan

    Thank you for all of your feedback, We have revised the post and added the additional resources that Michele mentioned. While we try to be as thorough as possible we won’t always catch every resource, so thank you for helping out.

  • Pingback: Check out this resource: 25 Cerebral Palsy Resources You Should Know About | Digital Differentiation()

  • Brenda

    In 1992, my youngest brother, David, was born with Cerebral Palsy. I was only 6 at the time, and my younger brother, Javi, was 4. Although we always knew there was something a little different about David, we tried to treat him as though he was just like us. It was only when it was brought to our attention by other children who (out of ignorance) acted as bullies, did we become aware that our brother was (as they called him), “Retarded”. Like most kids, I had dealt with the usual playground teasing and calling of names towards me, but I could easily brush those off. It was when my little brother, who couldn’t defend himself, was being teased it hurt on a much deeper level. It was at that moment, that I would make it my mission in life to teach people about children like my brother David. It would be a few years, however, before I’d discover just how.

    In 2003, as part of a High School Senior project, I wrote a series of children’s books to help children of all ages understand a topic that many parents may not know how to address, which is special needs. My first book in that series was, “What About Me?” (published in 2004). The book deals with the concerns and feelings a sibling of a child with special needs may experience. It was written to help siblings understand their siblings’ special needs and to inform their parents that although their special child may need additional care, that their “mainstream” children are also facing something alongside them.

    Last month (after years of sitting in my laptop), with the help of the talented illustrator Kirsten Winkelbauer, my second children’s book entitled, “A Little Different From Me” completed publication. While my first book was written as a bridge of communication for parents of children with special needs to understand their other children’s emotions, this book written to introduce all children (and adults) to other children with special needs through David’s story. “A Little Different From Me” teaches children to have patience, understanding, and compassion, and to embrace each other’s differences. It was written with the hopes of creating an increase in awareness and decrease in bullying.

    The day God gave my family David is the day our family received the greatest blessing. It hasn’t always been butterflies and rainbows, but seeing his smile makes it all worth it. He has taught me what true strength is, and the beauty of accepting others for who they are. What most would consider small accomplishments (such as tying one’s shoes or getting yourself dressed) is something we nearly lift David on our shoulders for. It’s a beautiful thing to be able to see life in slow motion and admire it for what it is, and David is a constantly reminding us to do just that. David has brought such light into my family’s life, and I want to share that light to others through these books.

    The books are available on Amazon.com

    A Little Different From Me: http://www.amazon.com/A-Little-Different-From-Me/dp/1490714855/ref=sr_1_1?ie=UTF8&qid=1383063607&sr=8-1&keywords=brenda+valencia

    What About Me: http://www.amazon.com/What-About-Brenda-Lizzett-Valencia/dp/1412015073/ref=pd_sim_b_1

    For more information about the books and my brother David, please see my Facebook page, below.

    https://www.facebook.com/pages/Brenda-L-Valencia/144336918940

  • Cerebral Palsy

    Thank you Friendship Circle of Michigan for listening and taking they time to make changes to this post. It really is a testimony to your good work and intentions to have done this. I would love to talk about CP community advocacy issues and resources further with you. I am deeply committed to helping the community move forward. Even though cerebral palsy is the most common motor disability in childhood and has a very large adult community, it receives very little private funding and has no dedicated federal funding (although most disease and disorder groups do not have federal funding commitments either). There is so much confusion about what is being done for the CP community and by whom and it’s not just confusing to families, but also for professionals. I have been researching the landscape of how different pieces are or are not coming together to meet the community’s needs and we have work to do. I see it as imperative that social media power is used to establish clarity among this confusion.

    I see that you left CP Family Network as a CP organization. Although they may provide resources, I certainly would not consider them a CP organization. Many law firms establish non-profits which operate as the front of the house for a medical malpractice law firm, which is what they are.

    Also, UCP is not a CP organization, nor do they wish to be seen as one beyond their interest in collecting money in the name of cerebral palsy. If they are to be included at all I would put them in the resource category. It’s confusing since they are an affiliate network, but their national mission is very clear. They are no different in their focus than Easter Seals or perhaps Friendship Circle. Affiliates don’t have to have any focus on cerebral palsy, nor serve any members of our community in order to become an affiliate. At the same time, and as I mentioned before, there may be some wonderful affiliates who have excellent programming and resources for people with cerebral palsy. Mom Penny Leigh Strickland I am not intending to devalue your experience. At the same time, UCP affiliates are mostly service providers and there is no stated commitment to the CP community. They do not fund CP research, and there is no guiding mission to support the CP community nor dedication to educating affiliate staff members about cerebral palsy. In response to this criticism UCP National created some marketing literature which they distributed to affiliates to offer basic information about cerebral palsy. It’s hit or miss depending on the affiliate near you.

    A few more CP organizations for you:

    Let’s Cure CP
    Pedal With Pete

    A great book co-authored by the co-founder of CanChild, Dr. Peter Rosenbaum: http://www.amazon.com/Cerebral-Palsy-Diagnosis-Adult-Practical/dp/1908316500. Dr. Rosenbaum is also the Chairman of the CPIRF Scientific Advisory Council, as well as a member of their Board of Directors. He helped establish the GMFCS and other related evaluations that have helped describe and research the CP community.

  • J.K.L. Griggs

    I am very disappointed in
    #19. Mommy, Can I Play with Tommy?
    “Mommy, Can I Play with Tommy?” is a story about a playground experience that provides children a new perspective on how to include a child with cerebral palsy.

    I ordered 3 copies of this book with high hopes. This book has NOTHING to do with CP AND the publisher REFUSED to give me back my almost $50 I spent on them!
    WARNING DO NOT BUY THIS BOOK! It is NOT about CP!

  • Scooby

    In this article … you should include MOVE international.org MOVE stands for Mobility Opportunities via Education. Through this program, people whom have physical challenges, learn to sit, stand and walk.

    • BrianH

      Thanks the info on Move. My son is elsewhere international with his mom, I’m seeking his help in alternate ways since there is no proper care, therapy in his location.

  • Thank you, Friendship Circle, for including us in your article “25 Cerebral Palsy Resources You Should Know About”. To clear up some confusion, we wanted to share a bit about the history of the CP Family Network and why we were founded. We were started by a group of families whose children developed cerebral palsy due to medical errors and birth injuries. Our attorneys at the MyAdvocates law firm realized many of their clients with children with CP had very few resources or support networks to turn to. That’s why they helped us start the CP Family Network. It was created to serve as a community where parents and caregivers can share information, resources, encouraging words, and more with other families of children with cerebral palsy, regardless of the cause! We provide helpful blogs, news stories, a searchable database of local resources, and active social communities for families in the U.S. and beyond. We are so thankful for the support of MyAdvocates and the great relationships it has allowed us to forge with other families of children with CP. Please do not hesitate to contact us if you have any other questions about our organization.

  • Cindy Scott Day

    I would like to add Children’s Hemiplegia and Stroke Association to your additional resources. www. chasa.org.

  • Pingback: DOs & DON’Ts for Explaining Disabilities to Young Children « Say Hello, Yellow!()

  • Ro

    Great collection of resources, thank you for the post. For parents of children living with cerebral palsy in London – The London Centre for Children with Cerebral Palsy http://www.cplondon.org.uk/ is the leading centre for conductive education in the UK. They run parent and toddler classes, outreach and training, holiday sessions and also run a primary school for children with cerebral palsy and associated disabilities – brilliant place for specialist, expert advice and support.

  • Chris Lenart

    Hi! My name is Chris Lenart And I have CP. I have a youtube channel to spread awareness and to assist others with CP in their daily living. Topics range from relationships to technology as well as advocacy. I think it would benefit many people with CP. Thanks for sharing!

    https://www.youtube.com/channel/UCZJuCecT735_74yCXhE5Q4g

  • Rachel Clark

    Dear Sir or Madam:

    To briefly introduce myself, my name is Rachel Clark, and I am a client of Lynette Louise aka The Brain Broad. In case you don’t know who that is, please allow me to introduce you! Lynette Louise is an internationally respected and sought-after mental health expert, neurofeedback clinician and play therapist who travels the globe providing life-changing help to families who are struggling with many different brain disorders and challenges.

    Since I share Lynette’s desire to create a more loving world for the differently abled, I decided to write to you to let you know about The WingMaker, a book she has written with that intention.

    In Lynette’s own description, The WingMaker is a book about “A New Kind Of Comic Book SuperHero– a superhero that reaches into your heart and changes your perspective.” Based on the true story of one of her other real-life clients, it is about a play therapist and her cerebral palsy playmate. It is a story that inspires even those who were previously repelled to value the super challenged, possibly short-lived child. “It took me years to find the story that I believed had the potential to reach into the heart of people regardless of their desire for self awareness, and another year to find the ‘hip’ comic book rhyming picture style that might invite teenagers to read; and finally I have it!” Lynette explains excitedly! And she is right. This is a very special book that will improve any life blessed enough to read it. Yours? And/or those of people you know? To look further at The WingMaker, and to purchase your copies of it, you may do so at this link:
    http://www.lynettelouise.com/book/

    And, if you like the book as much as I believe you will, and if you know others who would be blessed by it too, please don’t hesitate to share the knowledge EVERYWHERE!

    Thank you so much in advance,
    Rachel Clark

  • Pingback: What You Need to Know About Cerebral Palsy | Features | CDC | Early Childhood Parenting()

  • Pingback: Cerebral Palsy – KidsHealth | Early Childhood Parenting()

  • Pingback: Early Childhood Parenting()

  • Pingback: Signs of Cerebral Palsy | Symptoms | CerebralPalsy … | Early Childhood Parenting()

  • Hello, My husband Ben D. Anderson was born with cerebral palsy back in 1953 in North Dakota at a time when there were no services to teach him to speak and walk. He began his non-profit Break Through Inc. back in 1978 to help parents and persons with disabilities. He is an advocate, author and speaker throughout the U.S. His books are being used as textbooks at universities. He has a degree in Vocational Rehab. His one book is entitled “IQ of 63, So What!” Going Beyond Everybody Else’s Expectations and ‘Last One Picked, So What! We can turn it around ( about bullying ) I think parents with children with any disability should go to his website and read about him. He would be a good speaker to come to your schools or parent groups. His website is http://www.bendanderson.com Thanks for sharing.

  • Pingback: 25 Cerebral Palsy Resources You Should Know About | HEALTH AT HEART()

  • Pingback: Cerebral Palsy | Slõ Drinks Global()

  • Pingback: 25 Cerebral Palsy Resources You Should Know About | Medical Aesthetic Journal.com()

  • Pingback: Cerebral Palsy Family Network | mastersofpublicpolicyonline.com()

  • Veena Hemesh

    Hi, I’m Dr Veena, Chief Physician at Dr Veena’s Ayurmantra, Kerala, India.Cerebral Palsy has good treatment in Ayurvedic medicine. I’m not pretty sure how many parents are aware of this fact. Modern medicine has limitations in treating the problem, but Ayurvedic treatment can help the kid to a great extent. If the child is younger, the results are good and by ayurvedic treatment the life quality can be much better. Not just for CP, Autism, ADHD and other disorders can be effectively managed.

  • Layla Forndez

    Hi, I’m Akbar from UAE. I had a hemmoragic stroke for 6 years on the right side. This was so tough for me because i never imagined myself in this way. I lost my speech and i was obviously useless because i could not perform any activity without any support, i could not walk, i use dto enjoy driving but none of this i could do again. I was totally paralyzed. The worst part was the emotional aspect of it. I cry very easily and have no control over it because all the doctors or physiotherapist i met were not helpful at all. I am, however, very lucky that i was able to find a very effective alternative natural treatment to stroke that cured me completely. It has been two years now and i still can drive, i actually thought the cure was not permanent but now i am fully convinced and that is why i decided to write this. If you have stroke or any paralysis just contact Dr Joseph on (josephalberteo @ gmail. com) for more information or advise and i am sure his medicine can help you too. I hope this helps someone out there.

  • Ann Horst

    I was just diagnosed, at age 51, with Upper Motor Neuron Syndrome, quite possibly from very mild CP. I am on disability now because I was never diagnosed appropriately, until now. I suspect that the spasticity and joint problems throughout my body will continue to cause problems as I age, but I am unable to find any resources targeted to my age group. Can anyone recommend resources for me and for the many other adults out there in the same boat? Thanks so much!

  • Al Ramirez

    I’m not sure why anyone would be disappointed. Just because a law firm is listed as a resource does not mean that they have a self serving agenda. To make a blanket assumption about their motives is just as closed minded as people who may judge you, your child or friend who has a disability. As an adult with CP, I have no association or need for that type of resource, but a glad that is available for consideration. Everybody’s situation and needs are different and change as they move through different stages of life.

Categories

Notice: Use of undefined constant fbTracking - assumed 'fbTracking' in /var/www/friendshipcircle.org/blog/wp-content/themes/fcblog17/footer.php on line 52