1. Get a library card

Most public libraries have some type of summer reading program with incentives, so it’s a good opportunity to get a library card and learn how to find and check out books, music and movies.

This means that your child will need to approach the librarian’s desk in the library, ask for a new card and answer all of the questions that follow.  In most cities, the only requirements for a library card are being able to sign one’s name and proof of residency from a guardian.

2. Lemonade Stand 

When my son got his library card, he immediately insisted on getting a wallet to keep it in.  Once he had his own wallet, he wanted spending money.  So he had to think of ways to earn money.

A neighborhood lemonade stand is an excellent way to encourage an entrepreneurial spirit as well as basic life skills.  Each customer must be greeted, lemonade must be poured carefully, money must be counted.

3. Clean out a closet

Cleaning out a closet is a positive rainy-day activity.  Put aside the outgrown clothing and neglected toys.  Arrange the closet to maximize accessibility.

You can also check out some more ideas for chores here.

4. Garage Sale

Now that you have a few boxes of stuff you don’t need anymore, start planning a garage sale.  Multi-family garage sales are more successful with less work per person than single-family sales.

We recently hosted a multi-family garage sale at our home to raise funds for a new playground at the local elementary school.  We had to talk about storing items before the sale, pricing items to make sure they were sold quickly, finding free advertising venues online, and how to organize the merchandise.  And then we talked to customers and made change all day!

5. Yard Work 

Occupational therapists strongly recommend “heavy work,” that is, any type of exertion that puts pressure on the joints of the upper body, for individuals with special needs.  The benefits of heavy work are increased attention, arousal level, body awareness and muscle tone, as well as decreased sensory defensiveness.

Get out a rake and clean out the old leaves from under the shrubbery, dig up some weeds, pull out the hose and water some plants, use the wheelbarrow to carry mulch to the backyard and compost the yard waste.  Since yard work is a multi-step process with unique tools for each stage, you’ll also be modeling organizational skills.

6. Pick fruit at a local farm 

I haven’t taken the leap to start a home garden yet, but my family does visit several local farms every summer to pick fruit.  It’s a basic economics lesson to understand where the food comes from and the resources needed to grow the food.

My children also learn to identify which fruit is ripe enough to be picked, how to pull it gently off the plant without damage and how to handle food safely for the trip home.  At the cherry orchard I had each child count 100 cherries as they were picked.

7. Explore a new park 

Instead of going to the same park 5 minutes from your home, try a different one.  Challenge yourself and your loved one on the new playground equipment.  If there’s a nature trail, pick up a map and find your way together.

8. Plan a picnic 

Let your loved one pack lunch for everyone on your next outing.  Write out a menu, count the water bottles, find the ice packs, and make sure the cooler isn’t too heavy!

9. Hit the beach 

The beach offers a great incentive to learn self-care skills such as dressing and undressing, applying sunscreen and keeping a hat and sunglasses nearby.

The beach is also the perfect place to practice safety skills such as the buddy system and treading water.  Many beaches are now wheelchair accessible, so call first to ask if beach wheels are available.

10. Camping 

With all of my family’s sleep and food issues, I was afraid to try camping for a long time.  An opportunity arose when our city sponsored an overnight family camp out at a local park.  We practiced pitching our tent at home first.

I decided that I wasn’t ready to try outdoor grilling in addition to caring for my son, so we packed sandwiches, bagels and lots of fresh fruit to eat.  We took long walks in the woods all afternoon, and we roasted marshmallows and sang songs at the evening bonfire.  On the way home, my son was already planning our next camping trip.

Some state and national parks offer wheelchair accessible, air-conditioned cabins in scenic locations.  Other parks offer yurts with a wood-burning stove for a different type of rustic experience.  Whatever your comfort level is, there’s something out there just for you.

How will you practice life skills this summer?

William

William is a happy 6 year old boy who longs to ride with his 7 yo sister. He was born with Spastic Quad CP and then had a catastrophic stroke at 2.5. He now has very low trunk tone and needs full support to ride. Thank you for this chance!

Morgan Santangelo

Morgan is a 7 yr old triplet who has Spastic Diplegia CP & Cortical Visual Impairment. Morgan is always trying to keep up with her other 2 sisters & older brother. She asks constantly when she will have a bike to ride so she can join them.

Dallas J Henderson

Dallas is a 13 yr old boy who has NF1 amongst other things. For is 11th birthday he received a tracheotomy after a very bad dentist appointment, we would love for him to have some freedom back as he is now dependant on an attendant at all times.

Meliq Shadley

Meliq is a vibrant,happy 6 year old who loves people ans smiling! He has had a trying past starting at 6 weeks old, but 6 years later he’s still here and progressing well. Ladies and gents here is our miracle on wheels Meliq, Keep Smiling!

Jon Paul

Jon Paul is blind and has a global developmental delay, but that doesn’t slow him down! He’s an active 5 year old who plays adaptive sports. A buddy bike would be the perfect way for him to enjoy biking with his big sister and family!

Audrey Huddlestun

I am a 9 year old with Down Syndrome that loves to be outside! I have worked very hard to learn to petal a bike, but steering and breaking are too hard! This bike would help me ride with my brother and sister and my mom would get to ride too!

Jon Miles Wendling

Born @ 1lb 8oz. Jon is non verbal , has autism &cerebral palsy A happy kid when he is not sitting at the front window sadly looking out at the kids riding their bikes. His muscle tone does not let him ride a bike. please vote for him and others!

Abbie Levine

Abbie is a sweet, amazing 11 y/o girl. We are so blessed to have her here w/ us. She was born healthy, but got really sick a few years ago. She received a Heart AND Kidney Transplant and lost her right leg. This bike is just what she needs! Thnx.

Kendall Mulvihill

Kendall was a 1½ lb preemie and has cerebral palsy. Our favorite activity were bike rides along the beach. As he grew out of his WeeRide seat, it became too difficult and dangerous to ride any other way. Now 12, we pray to regain our family fun.

Grayson Hicks

Grayson is an amazing seven year old boy that happens to have Down syndrome. Grayson loves playing outside. We have tried many different bicycles with him, but because of his body type and lower muscle tone, none have worked.

Victoria Paige Webb

Victoria 12 with Down syndrome. Currently she is overweight at 137 lbs even on a low-fat diet. The Flaghouse will help her lose weight to maintain a healthy lifestyle. She wants to be able to ride with her sister and get the exercise she needs.

Anna Fix

Anna is 13 yr old little girl who longs to ride bikes with her 14 yr old sister, but do to her Mitochondrial Disease and rare form Epilepsy she is unable to ride a conventional bike. Having a special bike would definitely allow her to accomplish it.

Foster Stetts

Foster is our incredible 10 yo. He was born with severe hypotonia & autism. His lack of muscle tone, balance & coordination have led to many falls & broken bones, & made it hard to play sports. He would love to be able to ride bikes with his family.

Rachel Weigle

Rachel is a 17 year old with CP. She had a trike when she was younger and loved to ride it. She outgrew it and had a spinal fusion so she needs something more adapted to her needs. She needs exercise to prevent weight gain.

Maureen Reyes

Maureen suffered 2 brain hemorrhages just over 2 years ago as the result of an AVM in her mid- brain leaving her with many limitations; including the ability to walk or ride a regular bike. This bike will allow her to do something she enjoy.

Megan Greshem

Megan is an 11 year old with a heart of gold. She was diagnosed with Heriditary Spastic Paresis. This disease causes her to be weak in the lower extremities, causing frequent falls. She is unable to ride a regular bike and feels left out.

David Borgol

David is 10 years happy. He has Down Syndrome, a congenital heart disease, low muscle tone and lack of coordination skills but that does not stop him from wanting to keep up with his peers. Please give him the opportunity to be like any other child.

Dylan

Dylan just turned ten this week and is diagnosed with autism. He is about to move to town where he would be able to ride the bike at the park and on the school grounds. He had a trike when he was younger, but has outgrown it.

Kayli Whistler

Kayli is surviving a life threatening, Trisomy 18 syndrome. She has overcome 32 min. of death, a perforated bowel, a misplaced Gtube, and a nursing accident resulting in a trach. Kayli is gaining major motor skills, and challenging the impossible!

Casey

Casey had an adaptive bike when she was younger but outgrew it. We later donated to an org. with children with special needs similar to hers. Free wheeling in the driveway is her way of getting around for fun. A new bike would be an awesome gift!

Charles Judd Nash

Judd is 5 and has Cerebral Palsy.Typical trikes are too small and he can’t keep his feet on the pedals. The Rifton Adaptive Tricycle would be perfect for him. Riding would be therapeutic for his muscles and would be so much fun! Please help him win!

Jack Levesque

Jack is three years old and he has a rare illness that encompasses many conditions. We would love this bike for our hero. He is brave and strong! He has had over 35 surgeries and keeps on smiling! Jack Jack is our hero! Thank you.

Hailee Warren

Hailee was born with Spina Bifida (Myelomeningocele). She is 6 years old and wants to ride a bike so much. She wears KFOs when she walks with her walker. I think this trike would help her so much and give her much needed independence.

Abigail Reyes

Abigail is an amazing strong 4 1/2 year old, who has left hemiplagia due to a massive stroke she suffered from last year. She would love to join not only her brother for a bike ride but also her classmates on bike days at school.

Director’s Choice

Ashley Palodichuk

Ashley is a sweet eighteen year old that enjoys spending time with her family. She has recently lost 38lbs. Receiving an adaptive bicycle would not only provide her with freedom and enjoyment but a healthy lifestyle as well. Please help Ashley!

Carlo

Carlo is a giggly, happy 4 year old who was born in Haiti. We were blessed to adopt him into our family in July 2011! He is legally blind and autistic, but making remarkable progress. He LOVES any kind of movement and so this bike is perfect!

Zachary Rice

Zachary is 17 years old and loves to be on the go! Zach has Ring 22 Syndrome and Autism. We are always looking for things to do as a family and this bike would be a wonderful way for us to have some heart healthy family fun together!

Mya VanPelt

Mya was born a micropreemie at 1lb 2ozs. She is an amazing, loving and wonderful little girl. She has had to fight to achieve all of her goals every single day of her life. This bike would allow her to feel like she is included with her peers!

Nicolas Selz

Nick is 9 years old & a special child. He has Hydrocephalus, seizures & CP. Nick loves bikes & would love nothing more to have one that he could ride. Your bike, in no uncertain terms, would give him a childhood that he hasn’t had the luxury of yet.

About Enbrighten

Enbrighten™ is an engaging and thought-provoking comprehension game designed to empower students with the tools necessary to approach and ultimately understand both narrative and informational text. This strategy emboldens students and teachers to establish comprehension as a process of cognition rather than something assessed by an isolated set of comprehension questions.

Enbrighten™ also encourages the development of metacognition, critical thinking, listening, and speaking skills within the classroom environment. It is designed to act as a supplement to any curriculum and can be used with any preexisting classroom text.

Although the game was developed for a classroom setting, I think there are many ways it could be adapted for parents to use when reading with their children as well. Here is an overview of the Enbrighten Comprehension Game

Materials Needed

Step 1

Each student is assigned a strategy job. If playing the game with a large group, students can work in teams.

Step 2

Understanding the strategy jobs:

Summarizer:
The student who is assigned this role needs to summarize, or recap in 1-2 sentences, what the story is about.

Vocab Master:
The student who is assigned this role needs to refer to the text to pick out 1 or 2 “trick” or “interesting” words, write that word down, and use context clues to come up with a definition. They may then use a dictionary or other resource tool to check their definition.

Connector:
The student who is assigned this role needs to make a connection to the text. They can make a text-to-text connection, text-to-self, or text-to-world (these types of connections will need to be taught before the game is played!)

Clarifier:
The student who is assigned this role needs to clarify any part of the story that may be confusing. This person should go after the questioner. If another student (or team) poses a question, it is the clarifiers job to answer. This is arguably the most difficult strategy job and should only be assigned to those students who would succeed at this job. Personally, I have yet to introduce this strategy job into my classroom.

Visualizer:
The student who is assigned this role needs to draw a picture of what is happening in the text.

Predictor:
The student who is assigned this role needs to make a prediction, or guess, as to what is going to happen next in the story.

Questioner:
The student who is assigned this role needs to pose a question to the other students/groups about the text. They can also ask an open-ended question or write down a question that they were confused on while reading.

*Students are provided with sentence starters to help them begin to process what they want to write about/discuss

Step 3

Text is read aloud, within the small groups, or independently. (You can differentiate depending on skill level of students and level of text.) Students can take notes on what is being read.

Step 4

At an appropriate stopping point, ask the students to each write down one idea from the text based on their strategy.

Step 5

Call on a group, or student, to share their idea. Stress to the students that points are not earned for correct answers but for sharing ideas, getting the discussion started, or explaining your thinking. Students (or groups) can also receive points for expanding on another person’s (groups) idea.

The Enbrighten website does provide a rubric for each strategy job that can be purchased. This is beneficial if the game is played in a classroom setting to allow for student progress to be monitored and their work to be evaluated.

Overall, this game seems like a great way to get students discussing books. Each strategy is aligned to the common core and can be paired with other reading supports to assist students in the skill of comprehension. Again, please visit the website for more detailed information! I have provided an overview of the game but for more information, please visit their website at: http://www.saneandsavvystrategies.com

What Is A Sensory Story?

A sensory story is usually quite short, with each sentence of the story being accompanied by a sensory stimulus. When choosing stimuli it is important to try and think of really good ones! Which one of these would make a good touch experience? Feeling a cuddly toy or feeling the air from a hair dryer on the sole of your foot? You want to aim for the really great experiences when creating a story. Sensory rooms and sensory resources can provide great experiences but we can also discover them ourselves simply by being alert.

The Benefits of Sensory Stories

As children, and as adults too, we enjoy sharing a favourite story repeatedly. There is a security to be found in familiarity. Sensory stories use repetition to build children’s confidence as they learn from stimuli, they give children opportunities to fine tune their responses to stimuli.

For children with profound and multiple disabilities (PMLD) the world can be a daunting place. Through sharing sensory stories we can help children to build their confidence at encountering new stimuli.

Consider how you would feel if you were placed in the position of an individual with PMLD – with restricted movement, impaired senses and possibly cognition,- and whilst you were wheeling to the car one day a dog barked at you suddenly. The sound could be terrifying, your anxiety levels could rocket, and your outing could be spoiled.

Now consider what would happen if you had already encountered that sound in a place where you felt safe, with someone whom you trusted. In this latter version of events the dog bark doesn’t throw you, and your outing is still an adventure waiting to be had. By supporting our children in encountering stimuli in a safe environment we open the world to them.

About the Author
Joanna Grace, I am a special needs consultant in the UK. I work creating these stories. I have free resources to download at http://jo.element42.org and I currently have a Kickstarter project running with the aim of creating affordable stories for everyone The Sensory Story Project the film accompanying the project will give you more information about sensory stories.

According to United Cerebral Palsy, Assistive Technology (AT) often plays a vital role in the lives of people with disabilities. AT is any item, piece of equipment, or product that is used to increase, maintain, or improve the functional capabilities of individuals with disabilities.  AT has allowed accessibility for everyone.  No one, regardless of their abilities, should be left feeling like they have no independence or confidence.  Modern technology offers a plethora of products to assist individuals with CP on a daily basis.

There are four classifications of Cerebral Palsy.  Each classification pertains to how the muscles in the body are affected.  For example, individuals with Ataxic Cerebral Palsy may have very poor balance and be extremely unsteady when they walk, due to the muscles being too weak.

Depending on the type of Cerebral Palsy, the needs of AT may differ greatly.  There are numerous AT products on the market available to individuals with CP.

Here are 10 assistive technology/accessibility product for individuals with Cerebral Palsy.

1. Wheelchairs

An individual with spastic CP may have difficulty in walking because of the tight muscles in the hips and legs.  When both legs are affected (spastic diplegia), a wheelchair is a popular device for mobility and accessibility.  At Convaid, there are a variety of wheelchairs specially designed for individuals with CP.  For example, their chair with 30-fixed tilt, headrest, and h-harness are suited for someone with weak trunk muscles, and needs assistance to sit upright.

2. Adaptive Tricycle (for therapeutic cycling)

According to makers of an adaptive tricycle, therapeutic cycling can improve respiration, swallowing and the development of head and trunk control while strengthening anti-gravity muscles, improving eye-hand coordination and self-esteem.

3. Stool Scooters and Standing Equipment

Depending on your child’s life stage and ability, there are products developed for assisting with movement while promoting stability or when difficulty holding themselves in an upright position.

4. Stair Glides/Elevators and Mechanical Lifts

Stair glides and elevators are important devices to have in a home, work or school setting where there may be multiple levels.  An individual with CP is often unable to walk or climb stairs with ease.  With the use of a glide or elevator, an individual can travel up and down the stairs with independence, safety and ease.  A mechanical lift is often helpful for transporting an individual with CP into the bathtub, wheelchair or bed.

5. Car Seats

According to the American Academy of Pediatrics, there are different regulations to follow when traveling with your special needs child.  Depending on their disability, you may need an adaptive car seat.  It is important to never adapt a car seat on your own.

6. Adapted Vehicles

Depending on the transportation needs of you and/or your child, an adapted vehicle may be an easier and much safer transportation option.  For more information on Adapting Motor Vehicles for People With Disabilities, visit the National Highway Traffic Safety Administration.

7. Communication Devices

Some individuals with CP have speech problems and are not able to speak due to the muscle spasms in their mouth, throat and tongue.  Augmentative Alternative Communication (AAC) devices allow individuals the ability to communicate in different ways, specialized to their needs, such as signs, letters, pictures, and even a voice.

8. Adaptive Art Supplies

Art can be an effective and powerful form of expression, especially when a child feels limited by a disability.  Because there is no right or wrong way to “do art”, individuals with CP may feel confident.  Bright Hub Education suggests some excellent ways to make the process of making art more accessible.  For example, a child with spastic CP may find it easier to use large markers or paint brushes, as they are easier to grip.

9. Commode and Bath Chairs

The ability to use the toilet may be very empowering for an individual with CP, however, there may need to be modifications made in order to remain safe and hygienic.  Bath chairs are also helpful in providing a safe and stress-free bathing experience.

10. Writing tools

There are numerous devices to aid a student with CP in writing.  For example, the Steady Write Writing Instrument is designed to improve the handwriting of individuals with shaky handwriting due to involuntary movements.

Improve Life with Accessibility products and assistive technology

Whether you are looking for ways to modify your home to make it wheelchair accessible or looking for products to make daily bath time a little bit easier, there are numerous helpful accessibility products available for individuals with CP.  If you know of a product that can help individuals with cerebral palsy please share it in the comment section below.

About the Author
Adrienne Domeier is an avid blogger and freelance writer. She writes primarily in the health, social sciences, and legal fields. She strives to provide relevant and informative content to her readers. You can find her on Google+

Researchers at the University of Queensland in Australia recently published a study demonstrating a significant measurable increase in talking, smiling, laughing, looking at faces, making tactile contact and social approaches when children with autism and their peers played with 2 guinea pigs in a classroom.

I’ve already informally duplicated the study in my home by inviting my son’s friends to come over and play with our pet guinea pigs.  What always amazes me is that the conversation immediately turns to questions of empathy: “What are the guinea pigs thinking?  Why is he doing that?  What does he want?  How do I take care of him?”

Sooner or later, most families of children with special needs begin to think about adopting a pet for therapeutic reasons.  Of course, there are advantages and disadvantages to every type of pet.  Sometimes a pet is not logistically possible, but any pet has the potential to enrich family life.

Here are ten of the most popular pets for beginners, along with the pros and cons for each one.  If your family wants to adopt any type of pet, large or small, consider a rescue organization such as those listed on petfinder.com.

Dog 

Advantages:

• Very social and trainable, and deeply attached to their human family.
• Different breeds of dogs can serve different needs as well – for example, a Basenji is a “barkless” dog breed and an Italian Greyhound is a small, quiet companion.
• Encourages more exercise for the whole family.
• Many organizations such as Disability Assistance Dogs  and Autism Service Dogs of America  can match families with a trained service dog – but a service dog is a working dog, not a pet.

Disadvantages:

• Expensive care.
• Large time commitment.
• Many people are allergic to dog fur and dander.
• Most dog food contains food allergens such as peanuts, eggs and dairy, so individuals with food allergies will have a reaction from being licked by a dog, or even from touching dog fur – because the fur is coated with saliva and food residue.
• Most dogs do not like to be disturbed while eating and may interpret young children’s movements as threatening, so give some consideration to the behavior patterns in your home before adopting.

Cat 

Advantages:

• Cats tend to choose their families: 49 percent of pet cats are acquired as strays.
• Cats become attached to their families and enjoy companionship.
• Quiet.
• Relatively easy to clean up after them.

Disadvantages:

• Cats spend about 70% of the day sleeping and 15% of the day grooming – they are not nearly as playful as dogs.
• Almost all cat food is made with peanuts, so cat fur is coated with saliva and peanut residue – cats can be very dangerous for people with peanut allergies.
• Cat dander is another major allergen.

Rabbit 

Advantages:

• Soothing to watch and pet.
• Easy to clean up after them.
• Live up to 10 years.
• Rabbits are social and prefer to have another rabbit as a companion.
• Rabbits tend to be relatively low maintenance animals,  so their care is not too time-consuming.

Disadvantages:

• Many people are allergic to rabbits.
• Rabbits are not easily trained, but with time can be trained to use a litterbox.
• They chew on everything.
• Do not enjoy snuggling or being picked up.

Guinea Pig 

Advantages:

• Guinea pigs are social and are much happier living with another guinea pig.  Ask at the rescue shelter for a bonded pair.
• Furry and snuggly.
• Lower time commitment compared to cats or dogs.
• Communicative – guinea pigs squeak and make other sounds to express their feelings.

Disadvantages:

• Daily cage cleaning.
• Nail trimming is necessary and very challenging.
• Sometimes that squeaking gets annoying.
• Guinea pigs need space to move around – they should not be confined to the cage all day.

Hamster 

Advantages:

• Super fun to watch!
• Cage only needs to be cleaned once every two weeks.
• Inexpensive, easy care.

Disadvantages:

• Not as social as guinea pigs.
• May bite.
• Short life span -usually about 2 years.
• Nocturnal – will move around and make noise at night.

Rat 

Advantages:

• Even more social and engaging than dogs.  I almost got one for my son because the rat drew out and challenged all of my son’s social skills in less than 3 minutes.
• Affectionate and deeply attached to people.
• Fun loving, curious and playful.  Get two rats together and they will work very hard to entertain you.
• Intelligent and trainable.

Disadvantages:

• Many people have a serious fear of rats.
• Rats love to stay with their owner for several hours per day, riding around on the person’s shoulder.  They require a large commitment of time and attention or else they become depressed and ill.
• Rat droppings around the house.
• 2 year life span.

Parakeet (Budgie) 

Advantages:

• Bright, beautiful and social – much happier in pairs.
• Trainable.
• Great for people who live in a smaller home.

Disadvantages:

• The noise is a deal-breaker for those with difficulties with sensory integration.
• High upfront cost of cage and equipment.
• Daily cage cleaning.
• No snuggling, and biting is a risk.
• Bird droppings around the house if allowed to fly freely.

Leopard Gecko 

Advantages:

• Less expensive and easier to care for than other reptiles.
• Over time they become used to handling by owner.
• Remains small – maximum size is 8 inches long.
• Good for small living space.
• Ideal for people with fur allergies.
• Lives about 20 years.
• Quiet.
• Clean – uses one corner of cage as a bathroom.

Disadvantages:

• May carry salmonella bacteria – take precautions.
• Sensitive to temperature changes.
• High upfront cost for tank, heat lamp, materials to create a home environment, etc.
• No snuggling.

Slider Turtle 

Advantages:

• No allergies.
• Low veterinary expenses.
• Quiet.
• Inexpensive to feed.
• Lives for about 20 years – some Sliders live up to 70 years.

Disadvantages:

• Illegal to own Sliders in some states.
• May carry salmonella bacteria – take precautions.
• Frequent tank cleaning.
• Not snuggly.
• Unique “turtle” odors.
• High upfront cost for wet/dry habitat, tank, heat lamp, etc.
• Grows up to 10-11 inches in length and will need a larger tank.

Fish 

Advantages:

• Beautiful colors.
• No allergies.
• Instantly calming to watch – perfect for those struggling with anxiety or panic attacks.
• Great for small living space.

Disadvantages:

• Tank cleaning/maintenance.
• Short life span.
• High start-up cost and learning curve.
• May be unsafe around child with hyperactivity or destructive behaviors.
• Not snuggly.

What do you love most about your pet?  How has your pet helped your family?  Or is your favorite pet not on this list?  Please share in the comments below!

In order to have a proper plan in place, it is recommended that parents of special needs children have the following:

1. A Letter of Intent
2. A Last Will and Testament
3. A Supplemental Needs Trust
4. Advanced Directives
5. Guardianship

Your Last Will and Testament

This article will focus on the importance of the Last Will and Testament (“Will”).  It is recommended that all people die with a Will. However, having a Will is particularly important for those with special needs children.  A Will is the cornerstone of an effective estate plan. It is a written instrument that provides for the disposition of your property after your death. If you own a home, a car, have a checking or savings account then you have an estate and you need a Will!

Here are the top five reasons you need a Will

1. You are not invincible

Many people feel that because they are young and healthy, nothing is going to happen to them any time soon.

Do not wait until it is too late to do the planning. If you are reading this article you are ready to do the planning.  Mahatma Gandhi said “Learn as if you were going to live forever. Live as if you were going to die tomorrow.”  We cannot be sure what tomorrow will bring. The time to plan is now!

2. Having a Will saves money, time and heartache

Even if you do not care about the details once you are gone, appreciate how terribly difficult it would be during bereavement for your loved ones to deal with your estate without a Will. Your loved ones will be required to go to court to appoint an administrator (someone to handle your estate) when this could have been easily done in a Will.  It is important that you choose this person and rather than a judge, especially when you have a child with special needs.  You can save your loved ones time, trouble, arguments, expenses, and delays by having a Will.

3. Having a say in how your estate is to be distributed and who will become guardians.

If you die intestate (without a Will), your property will be distributed by a judge according to the laws of the state in which you reside at the time of your death. If you have a minor child at the time of your death and the child has no living parent, the judge will also choose the guardian for your child and the trustee to manage the minor child’s inheritance.

If you have an adult child with a disability and have never gone to court to seek guardianship, a judge will also choose the guardian for your adult child with a disability. A Will allows you to make recommendations as to whom you wish to nominate as your child’s guardian. It would be terrible for a judge to make these decisions without your input.

4. Protecting your child with special needs

If you have a child with special needs who requires public benefits to access adult services, your child must have to very little in assets. If your estate passes by intestacy (without a Will) it is very likely that your child with special needs would inherit assets.  Inheriting money would be disastrous because it could knock your child off precious public benefits.  Currently, the asset threshold for receiving public benefits is $2,000.  Thus, even if you have a small estate a Will is necessary.  Having a Will which creates a Supplemental Needs Trust for your child with special needs or leaves money to a Supplemental Needs Trust is extremely important.

5. Leaving your family with no guidance

This is the most important of all the reasons to have a Will and other necessary documents to plan for your special needs child’s future.

Find an attorney who specializes in estate planning

If you have a child with special needs, it is critically important to use an attorney that specializes in the unique issues involved with estate planning for special needs families.  Please contact www.specialneedsalliance.org for an attorney in your area. This is not something every attorney or even a general estate planning attorney can do.  You need to find a professional in your state that specializes in special needs planning so you can assure your child is protected.  This is not something you want to “bargain hunt” for. Not doing the planning correctly can end up costing so much more than using the properly qualified attorney.

About The Author:
Sheryl Frishman is of Counsel to the law firm of Littman Krooks LLP.  Prior to joining Littman Krooks, Sheryl was a partner in the law offices of Frishman & Faber, P.C. a practice devoted entirely to the advocacy and life planning needs of children and adults with disabilities and their families. Sheryl is also a co-host of the Family Network TV show “It’s a Matter of Law”,   a show that covers all legal aspects of having a child with special needs.  Sheryl received her B.S. from Union College, and her J.D. from Cardozo Law School of Yeshiva University.  Sheryl is the mother of three children, one of whom has Autism.

For the last three weeks Friendship Circle has been running the Great Bike Giveaway, a nationwide contest where children with special needs can win an adaptive bike. To date  there have been over 300 entries in the contest and there are six days left for more families with a special needs child to enter the contest.

The Great Bike Giveaway was created with the help of adaptive bike companies who have graciously donated one or more adaptive bikes to the  contest. Here is a chance for you to learn a bit more about the sponsors of the contest. Please take a minute to browse through their sites and check out the available adaptive bikes.

Ambucs

ContestBike Info

Established in 1994, AmTryke is a company owned and operated by National AMBUCS™, Inc, a national service organization dedicated to creating mobility and independence for people with disabilities. Over the years, AmTryke has designed a wide range of models, sizes, and adaptations suitable for many diagnoses at a low cost.

Buddy Bike

ContestBike Info

The Buddy Bike is an alternative tandem bicycle that provides safe family fun and therapeutic activity for cyclists with special needs. the alternative inline tandem bicycle (bicycle for two) places the stoker (smaller rider) in the front seat while the rear rider controls the steering. The Buddy Bike has a lower front seat so both riders can safely enjoy the view.

FlagHouse

ContestBike Info

FlagHouse strives to be the supplier of choice to professionals and consumers seeking resources for physical activity, recreation, education and special needs. Well into its sixth decade, this closely-knit, family-run company continues to reinvent itself to meet the needs of its customers. The company’s commitment to making a difference in the lives of others, and to excel in all it does, will continue to drive its growth and success for many years to come.

MonoMano

ContestBike Info

Since their inception, the yearly International da Vinci Awards® has become a prestigious international symbol of recognition. The awards honor individuals, organizations, and corporations in the engineering, construction, and technical fields for innovative developments and research in adaptive and assistive technologies. The Student of da Vinci Award recognizes the best student team among all applicants around the world.

Rifton

ContestBike Info

Since 1977, Rifton has partnered with therapists to design and manufacture durable, adjustable adaptive equipment. Rifton specializes in complex rehab equipment including: Pacer gait trainers; dynamic, supine and prone standers; adaptive or special needs tricycles; special needs positioning and activity chairs for the home and classroom; and a number of other adaptive products.

Triaid

ContestBike Info

Triaid is an innovative manufacturer and supplier of special needs equipment for children. Our design personnel have over 20 years experience in the design of special needs equipment for children. At Triaid we focus on two main product groups: Special Needs Tricycles and Handcycles

Tadpole Adaptive

ContestOther Info

Owned by a Wheelchair User and a Physical Therapist, Tadpole Adaptive is an online seller of pediatric rehab equipment. Tadpole Adaptive features a Registry program where families can host their own equipment fundraiser. The Tadpole Adaptive founders are experts in Pediatric Equipment and proud to be a returning sponsor of the Great Bike Giveaway.

The probability of knowing someone living with ASD is on the rise at an alarming rate. According to the United States Centers for Disease Control and Prevention (CDC), autism now affects about 1 in 50 children. That is a startling statistic, considering the rate was estimated at 1 in 88 in 2007 and 1 in 1,000 just ten years ago. Think of it in these terms: a typical school bus holds about 50 children, so on every bus, in every state, there is at least one child living with autism. Furthermore, boys are four times more likely to have the condition than girls, with 3-4% of boys in the United States diagnosed on the spectrum.

The spike in prevalence has led to a flurry of research that may lead to earlier diagnosis and treatment of susceptible infants and young children. Here is a breakdown of a few recent studies that have been of importance:

Earlier Diagnosis = Increased Outcomes

Although autism is generally diagnosed around age three, speech-language pathologist Dr. Rebecca Landa of the Kennedy Krieger Institute believes delays in communication, social skills and motor skills can be recognized as early as 14 months. If a diagnosis can be made earlier, when the child’s brain is more malleable and still developing circuitry, treatment can begin with increased positive outcomes.

Parents should watch for the following 10 symptoms when their child is between six and 12 months old and contact their pediatrician or other developmental expert if occurrences are noted. If you feel that something is wrong, take action immediately rather than a “wait and see” approach.

1. Rarely smiles when approached by caregiver
2. Rarely tries to imitate sounds or movements of others
3. Delayed or infrequent babbling
4. Does not respond to their name with increased consistency
5. Does not gesture to communicate by 10 months
6. Poor eye contact
7. Seeks your attention infrequently
8. Repeatedly stiffens arms, legs or displays unusual body movements
9. Does not reach up toward you when you reach to pick them up
10. Delays in motor development

Brain Scans Detect Early Signs of Autism

Scientists believe abnormal development may be detected in brain scans as early as 6 months, even before other signs are noted. Dr. Alan Evans of McGill University in Montreal is working to develop “at risk” biomarkers for autism.

In infancy, the brain is becoming organized, connections are rapidly developing with spikes at particular times, and the fiber pathways that connect the brain regions are forming. Evans is working to identify differences in the wiring of infants in those children who eventually develop autism.  His study is detecting new clues for early diagnosis.

Early Motor Expression Gives Infants a Social Jump Start

Early motor experiences can shape infants’ preferences for objects and faces.  An experiment in which infants wore “sticky mittens” that allowed them to manipulate toys showed an increased interest in faces, which leads to social development.  Early motor development and self-produced motor experiences contribute to the understanding of the social world around them.  When motor skills are impaired or delayed, future social interactions and development could be negatively impacted.

The mind is not independent of the body, especially in those developmental years.  As motor skills advance so do the other domains.  Infants with autism showed less interest in faces and social orientation.  Therefore children at risk of ASD or who show signs of abnormal social development may benefit from motor training as early as three months of age.

Autism Awareness is bringing to the forefront the importance of learning more about this diagnosis that some say is becoming commonplace – leaving out no population, race, country or social status.  Researchers are trying to help find the markers that indicate possible future probability in infancy so that therapy and intervention can begin as early as possible, making  changes to gain the most success.  

The theme that seems to come up over and over again lately is encouraging others to find and use their voice.

It started when I was working with my nephew in the classroom – the biggest revelation in our relationship was RDI and the first thing we needed to do was rebuild trust – he needed to find his voice in our relationship and so my first step was to quiet mine.

We began to communicate mostly nonverbally (tricky for me), and what came through so clearly was his absolute competency, which then led to deep confidence and off he went into the sunset.

My current work is what made me think of this theme in the first place. I was interviewing the staff and students at the YMCA Academy in downtown Toronto for our blog.  Over and over again in every aspect of their school, the student voice is strong and integrated. The students’ ideas are incorporated into everything from their schedule to the actual spatial design of the classrooms and it has a direct, (and very positive) impact on the culture of the school.

When you’re really encouraging someone to use their voice, (and you mean it) you’re inherently respecting them.

In the midst of this, of course, we operate a software company who’s entire focus is to help young kids with autism explore their interests, build a positive sense of self and reach out to their parents in a visual way.

This idea has been brewing on social media for a while now. We have a vibrant and talented community of voices speaking our about their own autism.  Carly Fleischmann and her incredible book co-written by her and her dad Arthur (if you haven’t read it, it’s a must), Henry Frost of #IStandWithHenry, artist Anabelle Listic and blogger Paul Seibenthal, to name a few.

It’s a new day – a good one, and I’m going to spend most of my time listening for a change.